2016 Walk to Answer TTP Together

 

 Overall Event Goal: 

82%

Goal$40,000.00

$32,898.50Raised

Walk Together. Anywhere in the World. Any Distance.

The Answering TTP Community is Taking Steps Together to Help Answer TTP

 Saturday, September 17, 2016.

Click here to Join the Movement to Raise Funds for Research and Awareness for TTP.
Walk in your community individually, in pairs, or in a team for 2 hours any distance.

 Registration Ends August 25 at Midnight

Individual and team registration available.
Customizable donation webpage for TTP fundraising provided.

This is Your Opportunity to
Enable TTP Research
such as...
 
Deeper insight into the misrouted immune response to ADAMTS13 in acquired TTP - a prerequisite for better patient management.
(NEW TTP research beginning September) 
Picture of Dr. J. A. Kremer Hovinga"At present TTP treatment is rather general and unspecific and consists of plasma exchange and immune suppressive agents, such as steroids and rituximab. Characterization and understanding the autoimmune response to ADAMTS13 is a prerequisite to develop specific treatment, i.e. aiming at the specific elimination of anti-ADAMTS13 antibody producing B-cells (instead of all B-cells as is done by rituximab) or the neutralization of circulating anti-ADAMTS13 antibodies. An anti-ADAMTS13 specific treatment at the appropriate time point is the ultimate goal of the proposed studies." 
      --- Prof. Dr. J. A. Kremer Hovinga, Department of Hematology and Central Hematology Laboratory, Inselpsital, Bern University Hospital. Photographed by: Tanja Läser, Insel Gruppe AG, Bern, Switzerland
Read more about this and other TTP research supported by the Foundation here
 

It’s up to you to help us reach our Goal!

New this year!!  We’ve changed things up a bit in an effort to reduce registration fees to enable you to grow your walk teams, to raise more dollars for TTP research.  Here’s what’s new: 

  • 2016 Walk Button!  Each registered walk participant will receive a 2016 Walk Button to pin on their shirt from the 2015 Walk to Answer TTP.  Collect your buttons each year and proudly display them on your shirt to demonstrate your continued commitment to TTP.

  • Thunderstix!  Make some Noise while you walk.  All registered team captains will receive a set of thunder sticks for each of their team members.  Have some fun by calling attention to your group as you walk!  Tell them why you’re walking! 

  • T-Shirt Creative!  New to the Walk this year?  We’ll share our t-shirt creative with you after you register. Simply email Events@AnsweringTTP.org to make the request.

                              
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Together we will raise life-saving awareness and funds to benefit
effective TTP research, education and patient support.

2015 Event 

In 2015 we raised over $47,000 a thanks to 257 international participants, including 20 teams. Top fundraising team was won by Walking for Trevor. Top individual fundraiser award was won by Rhonda Keay. The Spirit award was won by Annie's Army. Walk individually, or learn more about how to form your team here.

The TTP Community is a small and geographically dispersed population. The Walk to Answer TTP Together is designed to enable everyone to help improve the prognosis for all TTP patients. You don't need to be an athlete, you just have to want to help make change. Walk for 2 hours anywhere in the world, any distance at any time of day. Register to receive your customizable team and/or individual donation page today. Click here now!

Walk with other local walkers. To be connected with other walkers in your area, please email Events@AnsweringTTP.org by September 10, 2016. You must have already registered for the event to be connected with other walkers.

Please consider supporting the walk by pledging a participant. Click here for participant listing. If you do not know any participants you can make a general donation to the event by clicking here. Charitable Receipts for Donations of $25 or more. 

What is TTP?

A TTP, Thrombotic Thrombocytopenic Purpura, diagnosis is scary and complex. Many patients have never heard of this 3 letter acronym before, nor have they any idea as to its ramifications. TTP is a medical emergency causing small blood clots and potentially fatal complications. Early diagnosis is key to survival. TTP can strike anyone, at any stage of life. Three in one million people are diagnosed each year. Symptoms include: fatigue, fever, diarrhea, chest pain, bleeding, dark urine, confusion, headaches, visual changes, bruising, purpura, petechiae.


Research is Hope. Awareness is Low. Early Diagnosis is Key.

More information at www.AnsweringTTP.org

Charitable Registration # 84600 4802 RR0001

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